.We just published an article on the development of our Housing First implementation strategy!
Alpha test results for a Housing First eLearning strategy: The value of multiple qualitative methods for intervention design
By: Emily Q. Ahonen, Dennis P. Watson, Erin L. Adams, and Alan McGuire
Detailed descriptions of implementation strategies are lacking, and there is a corresponding dearth of information regarding methods employed in implementation strategy development. This paper describes methods and findings related to the alpha testing of eLearning modules developed as part of the Housing First Technical Assistance and Training (HFTAT) program’s development. Alpha testing is an approach for improving the quality of a product prior to beta (i.e., real world) testing with potential applications for intervention development.
Ten participants in two cities tested the modules. We collected data through (1) a structured log where participants were asked to record their experiences as they worked through the modules; (2) a brief online questionnaire delivered at the end of each module; and (3) focus groups.
The alpha test provided useful data related to the acceptability and feasibility of eLearning as an implementation strategy, as well as identifying a number of technical issues and bugs. Each of the qualitative methods used provided unique and valuable information. In particular, logs were the most useful for identifying technical issues, and focus groups provided high quality data regarding how the intervention could best be used as an implementation strategy.
Alpha testing was a valuable step in intervention development, providing us an understanding of issues that would have been more difficult to address at a later stage of the study. As a result, we were able to improve the modules prior to pilot testing of the entire HFTAT. Researchers wishing to alpha test interventions prior to piloting should balance the unique benefits of different data collection approaches with the need to minimize burdens for themselves and participants.
Housing First is a harm reduction approach to supportive housing. In the United States and Canada, and increasingly throughout Europe, homeless service providers have adopted Housing First as the guiding framework at the program and community level. Programs readily embraced the idea that we should remove barriers to housing people experiencing homelessness. The low threshold admissions policy gets people into our housing programs, but it is not sufficient. As any housing provider can tell you, the work truly begins after someone gets into housing. Once a participant is housed, participants and case managers alike may find themselves wondering, “What now?”
The critical ingredient of harm reduction-based services can guide the way that we approach participants in Housing First programs and facilitate nonjudgmental conversations with them about the risky behaviors they engage in. However, our team consistently finds that the knowledge and use of harm reduction strategies are missing in many Housing First programs. For example, during the course of one of our Housing First trainings, we met a case manager working for a housing program which identifies as practicing Housing First. When the case manager was asked about harm reduction training and practice in their program, they explained that they house people who are actively using drugs but was unable to articulate harm reduction’s role beyond that.
In an attempt to understand why programs aren’t consistently practicing harm reduction, we conducted a rapid review and document analysis of the open access literature on Housing First from the United States and Canada. The results demonstrated a lack of explicit mention and informed discussion of harm reduction in the majority of the Housing First literature. This may be a contributing factor to the limited education and application of harm reduction in Housing First programs. Read the full open access article, published in the Harm Reduction Journal here: Housing First and harm reduction: a rapid review and document analysis of the US and Canadian open-access literature
James Kowalsky, blog contributor and Project Coordinator for the Midwest Harm Reduction Institute, was recently featured on an episode of the podcast, Changing the Conversation. Changing the Conversation is a podcast hosted by Jeff Olivet, CEO of the Center for Social Innovation, that discusses issues related to homelessness, trauma, mental illness, and substance use. The podcast is an excellent resource for supporting the work of social service providers and a valuable advocacy tool for innovative solutions in the field. You can listen to the episode "That's Just Good Harm Reduction" by following this link: http://thinkt3.libsyn.com/thats-just-good-harm-reduction.
As a case manager in a Housing First program, you do so many things to support participants and improve their quality of life. The average day is so busy that it’s easy to let these seemingly small tasks go by unnoticed. It’s important to recognize that all these little tasks make you an amazing helper for your participants! Here’s an opportunity for you, as an individual or with your coworkers, to celebrate the things you do to help make positive changes in people’s lives. Thanks for all you do and happy holidays!
To print the Bingo card, copy and paste the image below into a document.
There’s a common trope among social service providers—don’t work harder than the client. While this makes practical sense, as programs aim to increase participant independence, it isn’t the appropriate approach in the Housing First Model. Housing First programs are designed to support the most vulnerable, and oftentimes disengaged, members of our communities. The participants that Housing First caters to are often reluctant to engage due to histories of trauma, symptoms of mental illness, or negative experiences trying to access care.
To overcome the barriers to engagement, case managers in Housing First programs will work harder than their clients at times. A case manager may end up making numerous unsuccessful attempts to engage someone—scheduling a home visit, making follow-up calls, leaving notes, or trying to find the participant in the community. These outreach and engagement efforts are time consuming and require the case manager to be persistent and patient. Housing First values the autonomy of a client and recognizes that a case manager cannot decide whether or not someone will make changes or force them to do so. However, case managers can increase the likelihood of engagement and change by consistently attempting to reach the client in a respectful, compassionate manner.
Many Housing First programs ask that clients have regular, meaningful engagement with a case manager. This can range from weekly meetings, to one or two engagements per month, to a meeting every three months. This minimum level of engagement gives the program an opportunity to confirm the client is still occupying their apartment and check in to see if any additional supports are desired. Housing First workers should strive to express concern and offer support without making the participant feel like the program is trying to catch them doing something wrong or that they’re expected to fail.
...case managers in Housing First programs will work harder than their clients at times.
Previously, we’ve talked about reduced service requirements as a critical ingredient of Housing First programs. This presents a dilemma for Housing First programs. How can we require that someone have contact with a case manager and not require them to participate in services? Programs are torn between providing support and encouraging self-determination. Housing First programs around the country navigate these issues by balancing competing concerns in different ways. For instance, there are some programs that prioritize housing maintenance above all else and choose to mandate that clients have a representative payee so that their rent is always paid and their housing is never lost due to nonpayment. Other programs place greater emphasis on the Housing First principle of valuing the client’s perspective so that a client chooses whether or not they want a rep payee. This has been framed in the mental health recovery model as “the dignity of risk.” Providing a greater degree of autonomy and independence is noble, but also comes with the risk that the participant may fall behind in rent. If that happens, it’s the case manager’s job to communicate with the landlord and increase engagement attempts to identify the participant’s barriers to paying rent.
People also shouldn’t be penalized for getting better. Sometimes, Housing First participants will engage less often because they are doing really well. They may be busy with employment, volunteering, spending time with family, or life in general. In these cases, engagement with Housing First staff may be as minimal as a phone check-in every couple months. Between a brief check-in and a lack of complaints from a landlord or property manager, the case manager can be assured that someone is doing well enough in housing that they do not need additional support.
This demonstrates the need for “moving on” or “bridge” programs. This approach helps people transition out of Housing First programs, which provide ongoing case management using a permanent supportive housing model, but keeps them connected with ongoing housing subsidies (e.g. housing choice vouchers) by partnering with local housing authorities. When clients no longer need ongoing support, our communities should be able to link them with less intensive programs that still assist with paying the rent. This can also open the door for someone else to enter the supportive housing spot they leave behind.
Adaptations can happen with an evidence-based practice while still staying true to the model. Ultimately, agencies must make individualized choices about how to operate their Housing First programs. To determine the appropriate level of engagement, programs should consider factors like the amount of staff time available, the level of need of participants, and the Housing First principles that they want to prioritize. Housing First programs should be prepared to be flexible with clients and understand that it’s difficult to come up with a one-size-fits-all approach to any program. Although requirements to engage on a monthly basis seem like a violation of reduced service requirements, they provide an opportunity to engage with participants and ensure they have access to community supports that can help them retain housing placement. With or without a requirement, it's up to the case manager to commit to reaching out regularly and attempting to stay connected with their participants.
We’ve taken a break from blogging the past month to work on our annual conference, Harm Reduction in the House. The conference focuses on how harm reduction can be applied to improve the delivery of housing and other social services. There are a number of nuanced issues that come up for participants in programs using the Housing First Model. This year, conference attendees were able to hone in on areas to use harm reduction including safer substance use practices, sexual health promotion with tools like PrEP, and engagement strategies that promote positive changes like the SODAS Method. The conference hosted several hundred presenters and attendees from around the Midwest including Illinois, Indiana, Wisconsin, Michigan, and Ohio. In this post, we look at some of the reaction and takeaways from the conference.
The theme of this year’s conference was “Growing from Our Roots.” Harm reduction is getting into the mainstream. In recent years, a broader range of programs and providers around the world have embraced harm reduction. Growing from Our Roots is a reminder that harm reduction work began with drug users and people actually engaged in risky behaviors. Their community, respect, and self-determination drive the principles of the harm reduction philosophy in service delivery. They are experts in their own lives and must be included in the work and accompanying advocacy efforts. Daniel Raymond, policy director at the Harm Reduction Coalition, attended the conference and offers additional thoughts on this topic and more in “Holding space for the unredeemed: harm reduction and justice.”
One of the popular sessions at the conference was the “Irreverent: Harm Reduction Youth Work and Radical Ministry” workshop. Rabbi Menachem Cohen and Pastor Alli Baker led a group discussion including youth who are LGBTQ and have experienced homelessness. The conversation explored the experience of homelessness from a young person’s perspective and what providers can do to create safe, welcoming environments. When workers listen nonjudgmentally and remain flexible, they have the power to support youth in getting off the streets and remaining housed. Rev. Kathryn Ray is a member of Clergy for a New Drug Policy and offered her thoughts on this workshop after attending the conference in “Rule Breaking and Radical Love.” She discusses the way that harm reduction can open doors for people and says, “Harm reduction work is gospel work.”
We have to acknowledge that we could not put on this conference without the help of our amazing volunteers. Thanks to everyone who pitched in! Among other duties, we had volunteers live-tweeting the conference. Below are some of the highlights from the day. For a full list of tweets, check out #HousingisHR on Twitter.
Photo credit PrEP4Love.com
The fight against HIV/AIDS advanced tremendously over the last 30 years. Treatments can decrease viral loads to undetectable levels, improving the health of people living with HIV and lowering the chances of transmitting HIV to others. But, with over 40,000 new HIV infections annually in the United States there is more to be done. Additionally, people of color, trans women, and men who are gay or bisexual continue to be disproportionately affected by HIV. In response, the National HIV/AIDS Strategy increasingly promotes HIV prevention efforts.
PrEP (pre-exposure prophylaxis) is a new approach to HIV prevention. PrEP treatment means that someone who is HIV-negative can take a daily pill to reduce their risk of becoming infected with HIV. PrEP does not protect against other sexually transmitted infections or pregnancy. It is intended to be used in combination with other safer sex measures, including condoms. Truvada is the medication currently approved for PrEP treatment by the FDA. The medication must be taken for at least seven days to reach sufficient levels for protection against HIV. PrEP is recommended for anybody at high risk of HIV infection. Primarily, this includes men or transgender women who have sex with men, people who are HIV-negative but have a partner who is HIV-positive, and people who inject drugs.
Research shows people who use PrEP experience a reduction in their risk of HIV infection. Transmission of HIV has been demonstrated to drop by over 90% among people who take PrEP consistently. As explained on the website PrepFacts.org, “If you don’t take PrEP consistently it can’t protect you from HIV, but if you do take it regularly it can offer strong protection.” PrEP is sometimes confused with PEP. PEP stands for post-exposure prophylaxis and can reduce someone’s risk of becoming infected with HIV after they’ve come into contact with it. To be effective, PEP treatment must begin within 72 hours of exposure to HIV and last for a month.
It’s important for housing first providers to be informed about PrEP and PEP and to share information about these treatments with their participants. Housing first providers work with people in marginalized communities who are at a heightened risk of HIV exposure. In addition to the groups previously mentioned, HIV is more prevalent among people who are homeless. Although PrEP is highly effective, one in three health care providers haven’t heard about it. So, it’s up to service providers and other helpers in the community to spread the word about this option.
Even if a health care provider is aware of PrEP, they might be too rushed to fully understand what’s going on with their patient or stigmatize their risky choices. The Housing First Model gives service providers the time needed to get to know someone and find out about potential risks they face. If housing first providers are using a harm reduction approach, they are more likely to get honest information about a participant engaging in unprotected sex or injection drug use. That means that they might be aware of a person’s heightened risk for getting HIV and can bring PrEP to someone’s attention, who may not hear about it otherwise.
Sex feels good. It helps satisfy our need for intimacy and connection. People do it despite the risks of unwanted pregnancy or sexually transmitted infections. As with all harm reduction work, staff's goal is to help people strategize how to get the benefits from a behavior without experiencing the consequences. Creativity is a necessity when service providers are collaboratively building a menu of options to reduce harm in their participants’ lives. But, that creativity can be stifled when staff try to talk about sex and participants respond by saying that they will never use condoms or that they are HIV-positive and sexually active. Don’t be deterred! Just because a person isn’t willing to do something in the safest way possible, doesn’t mean that they won’t consider other strategies that may help. Instead of using fear to motivate decision making, the focus should be on education, options, and empowerment. These values are reflected in many of the public health campaigns promoting PrEP which are more focused on being sexy than scary. Getting comfortable talking about risky sexual behaviors and the pleasure people get from their sex lives positions case managers to introduce options like PrEP to their participants in an appealing way.
Here are some additional resources for learning about PrEP. Check out this website for information on where to find PrEP in your area. PrEP is covered by most insurance providers and Medicaid. For more details about how to get PrEP, including links to available payment assistance programs, go to prep4love.com created by the AIDS Foundation of Chicago. Prepfacts.org was created by the San Francisco AIDS Foundation and includes a detailed list of frequently asked questions. The Well Project focuses on women’s health to address HIV/AIDS and presents a balanced overview of PrEP in the article “PrEP for Women”. On September 23rd the Midwest Harm Reduction Institute will be hosting a presentation on PrEP at the annual Harm Reduction in the House Conference in Chicago. Consider attending the conference or following the hashtag #HousingisHR to keep up with the conference.
Photo Credit OverdoseDay.com
August 31st is International Overdose Awareness Day. It is an opportunity to mourn the lives lost to drug overdose, raise awareness to aid in overdose prevention, and reduce the stigma surrounding illicit drug use. Drug overdose is the leading cause of injury-related death in the United States of America. In 2014, over 47,000 people died in the country from a drug overdose. In 2013, the number of drug-induced deaths (46,471) was more than the number of people killed by car accidents (33,804) and guns (33,636). That same year 29,000 people were killed by alcohol induced causes including dependent and nondependent use of alcohol, as well as death from alcohol poisoning. Everyone should be aware of overdose prevention strategies and the policies that support them. This is particularly true for case managers working in Housing First programs.
Consider some of the risk factors and populations that are correlated with drug overdose death in our country. Overdose is the leading cause of death among people who are homeless. A study assessing adults receiving care at Boston’s Health Care for the Homeless Program showed that drug overdose was the primary cause of death in the population, ahead of cancer and heart disease. Another study in Washington showed drug overdose is the leading cause of death among formerly incarcerated people. People with chronic health problems, primarily those involving a compromised immune system or respiratory problems, are also at a heightened risk of overdose. People who use drugs and are HIV-positive have a 74% greater risk of overdose compared to people who use drugs but are HIV-negative. These groups directly map onto the vulnerable populations served by Housing First programs, underlying a clear need to be informed about drug overdose and develop strategies to prevent it.
Many drug overdoses occur when people are using multiple substances. Opioids are involved in 60% of all drug overdose deaths. Opioids include drugs like heroin, fentanyl, methadone, and prescription pain relievers like oxycodone (e.g. OxyContin) and hydrocodone (e.g. Vicodin). The number of opioid-involved overdose deaths has nearly quadrupled since 1999 and is driving the increase in drug overdose deaths. While many people associate drug overdose with illicit drugs like heroin, it’s important to note that the majority of opioid drug overdose deaths involve a prescription opioid. Pharmaceutical drugs are involved in the majority of all drug overdose deaths. Medications used to treat mental health conditions are also frequently involved in overdose. Besides opioids, this most commonly involves benzodiazepines (e.g. Klonopin, Valium, Xanax). Therefore, it is crucial that service providers expand the range of participants they talk to about drug overdose.
Addressing overdose begins by learning about risk factors and talking with our participants about it. Helpers should be willing to bring up the topic of drug overdose with participants, find out what they know and what experiences they have had, and offer additional information when appropriate. Overdose often happens after a break in using. Tolerance levels for drugs like opioids can change drastically just a few days after someone stops using. This can occur when people are hospitalized or incarcerated, decide to quit or go to a treatment program, or just run out of money. That means the amount of the drug they need to get high will decrease, which may be a benefit for them, but it also means the amount that could lead to an overdose will decrease as well. Tasting, using a smaller amount than usual to determine the potency of a drug, is one strategy people can use to address this risk.
There are other factors to consider like using alone, mixing drugs, and route of administration. A person is more likely to die from an overdose if they use alone. Combining drugs like alcohol, cocaine or rock cocaine, heroin, and pharmaceutical drugs can all increase the risk of overdose. Use of multiple depressants can slow down breathing or other bodily functions to dangerous levels while mixing stimulants and depressants can overtax a person's body. Although injecting drugs increases the risk of overdose or transmitting diseases, some people prefer injection for a variety of reasons including a more intense high or efficient use of a substance. The Chicago Recovery Alliance provides an excellent resource for better vein care and safer injection techniques. For more information on risk factors, check out this worksheet from the Harm Reduction Coalition. In the spirit of a harm reduction approach, this information should be used to emphasize the individual’s safety rather than focusing on use itself. When people become more aware of the risk factors, they are more capable of making safer decisions about their drug use.
A drug overdose doesn’t have to result in death.
It’s also important to be informed about laws and other resources designed to curb overdose. The two main legal measures to address overdose death are naloxone access and Good Samaritan Laws. A drug overdose doesn’t have to result in death. Naloxone (Narcan) is a medicine traditionally used by first responders to reverse drug overdoses involving an opioid. By blocking opioid receptors in the brain for 15-30 minutes, naloxone can restore breathing and enable a person to survive an overdose. Many states are increasing access to naloxone for anybody who may witness or experience an overdose. In those states, people who use drugs, as well as their family members, friends, or service providers can carry naloxone in case of an opioid overdose. Find naloxone or overdose prevention programs in your area by using the Naloxone Finder.
Good Samaritan Laws provide legal immunity or other protections for people who call 911 to report a drug overdose. For instance, if someone calls to report that their friend is overdosing, a Good Samaritan Law can prevent them from being charged with possession of a controlled substance. Some participants are still concerned about the police arriving when they call 911. Telling the dispatcher that their friend has stopped breathing, as opposed to saying they are overdosing, increases the likelihood that only paramedics will come to the scene. To determine the exact laws in your state, check out the Law Atlas pages on Good Samaritan and naloxone.
Finally, make space to mourn and to act. Too often, families and loved ones are denied the ability to grieve when a life is lost to a drug overdose. The stigma associated with drugs contributes to shame about a substance-related passing. We should treat a death from drug overdose like any other death—a tragedy that impacts the lives of family, friends, and communities. Create space in your programs for participants to remember those they have lost to drug overdose. Attend a remembrance event, post something about drug overdose on social media, advocate for naloxone access in your community, or speak about the issue in your social service agency. The situation may seem bleak. But, there are concrete strategies everybody can implement to address drug overdose and reduce its impact on our communities. Too often, programs and service providers don’t consider their agency response to drug overdose until one of their participants has been affected. Make International Overdose Awareness Day the reason that you start or continue this conversation in your own program.
The Housing First Model and harm reduction promote the values of self-determination, connection, and human rights. Many of the people living in housing first programs use drugs or engage in other risky behaviors. The idea of respecting people who use drugs and improving their access to healthcare services is not unique to the Housing First Model. The Harm Reduction Coalition has been at the forefront of the social justice movement to recognize and uphold the rights of drug users for over 20 years. This post highlights this incredible organization and some of their resources which can support the work of housing first case managers.
The Harm Reduction Coalition was founded in 1993 by a group of drug users, needle exchange providers, and community activists. It is a national organization with offices in New York, NY; Oakland, CA; and Washington D.C. They promote harm reduction policies, practices, and programs in an effort to restore dignity and health to the individuals and communities who are impacted by drug use. To pursue this mission they host a bi-annual National Harm Reduction Conference, provide training and technical assistance to community-based organizations, and advocate for policy changes. Through their policy work and organizing, they give people who use drugs a voice in the policies that affect their lives. The core issues they focus on include drug overdose, transmission of HIV and hepatitis C, addiction, and incarceration.
The Harm Reduction Coalition is currently undergoing a leadership transition. Allan Clear decided to resign as Executive Director earlier this year after 20 years of leadership, service, and commitment to the cause. In his time with the Harm Reduction Coalition, Allan touched many lives and has inspired a generation of service providers and advocates. Allan chose to move on so that he could work for the New York State Department of Health AIDS Institute and serve as their Director of Drug User Health. It’s a testament to the work of the Harm Reduction Coalition that harm reduction has gone from being considered a radical idea to a formalized element of governmental agencies’ approach to public health. Recently, the Harm Reduction Coalition appointed Monique Tula as Executive Director. She worked in the HIV field for the past 20 years. Monique’s career is marked by dedication to harm reduction and the inclusion of people living with HIV in the programs and policies that impact them.
When case managers have questions about drugs and drug use, their clients are usually the best resource to consult. The next place to consider looking for information is the Harm Reduction Coalition website. They maintain a number of resources that can help case managers navigate complicated issues that may come up. For instance, they have some great resources related to Hepatitis C including “If You Drink Alcohol and have Hepatitis C or HIV Read This!” For a more general overview of Hepatitis C and some harm reduction tips for people who use drugs, check out this pamphlet. For basic drug information on cocaine, heroin, or speed case managers can consult the Straight Dope Education Series. Sometimes it can be hard to imagine how a person who is injecting drugs can reduce harm. Getting Off Right is a safety manual that provides an in-depth look at strategies to improve the health and safety of people who inject drugs. If you have a client that is required to submit for drug testing but is still actively using, you may have questions about how long drugs can be detected in a person’s system. The Harm Reduction Coalition has a resource for that. The Harm Reduction Coalition also maintains a national database to enable providers to connect locally with harm reduction programs in their area. These are just some of the resources that case managers can find to improve their work with participants who use drugs. Alongside organizations like the Harm Reduction Coalition, housing first programs can recognize and uplift the voices of vulnerable communities and support their ability to pursue an improved quality of life and sense of well-being.
Housing First programs prioritize highly vulnerable people with a serious mental illness who are coming out of extremely stressful circumstances. Considering these factors, it's expected that case managers will encounter some participants who experience psychosis. Psychosis refers to the presence of psychiatric symptoms involving a loss of contact with reality. These symptoms are the defining features of schizophrenia-spectrum disorders. But, these symptoms can be present for other reasons including: a mood disorder (most commonly bipolar disorder but also depression); substance use (e.g. hallucinogens or alcohol withdrawal); a physiological condition (e.g. head injury or migraines): or even just extreme deprivation caused by a lack of sleep, food, or water. Symptoms of psychosis include delusions, hallucinations, disorganized thoughts or behaviors including becoming catatonic, and negative symptoms (decreased motivation, limited emotional expressions, and decreased interest in pleasurable activities or social interaction).
It’s important to distinguish between delusions and hallucinations. Delusions are fixed false beliefs that may include the belief that a person has special powers (grandiose) or that someone is controlling or inserting thoughts into someone’s mind. Sometimes it can be hard to identify whether something is delusional because there may be degrees of truth. For instance, people may experience persecutory delusions (a belief that they are going to be harmed or harassed). In reality, many people we work with regularly encounter harassment and abuse related to their mental illness, lack of money, housing status, race, gender identity, or sexual orientation. Hallucinations are sensory experiences that occur without an external stimulus or outside input. A person may hear, see, smell, taste, or feel something that isn’t actually there. They may appear to be listening and responding to voices without anyone in view talking to them. Visual hallucinations tend to involve scenes with family members or animals (bugs crawling on your arm), seeing shadows, or visual distortion. To get an idea of what it’s like to experience auditory hallucinations check out this video and for an example of what visual distortion can feel like look at motion aftereffect illusions. Imagine how difficult these experiences can make going about your daily life.
Experiencing psychosis can be distressing and even harmful, regardless of the type and cause. Psychosis is associated with an increased risk of depression and suicide, impaired functioning in school or employment, and strained relationships resulting in a loss of supports. Symptoms of psychosis usually begin when people are between the ages of 16-30. Early intervention is important because the duration and severity of a psychotic episode can increase the likelihood of additional episodes and poor outcomes in the future. Coordinated Specialty Care (CSC) is a treatment program specifically developed to support people experiencing their first psychotic episode. CSC providers develop a personalized treatment plans that can incorporate medication, therapy, case management, education or employment, and family support to address a manage psychosis.
Because of the risks associated with psychosis, case managers and other helpers can use a harm reduction approach to support people. As with substance use, the focus should be on reducing the negative consequences of psychosis. Case managers should help participants learn to manage psychotic symptoms in a way that reduces their impact, instead of emphasizing the elimination of symptoms. The presence of psychosis does not have an inevitable result. It does not mean that a person can’t maintain housing and independence. As Sam Tsemberis, CEO and Founder of Pathways to Housing, explained in the @Home documentary segment on Housing First, “People have a functional ability and it’s quite separate from their diagnosis. You can believe that the government is after you or that there are people flying in from outer space and they’re going to take over the planet. And, leaving all that aside, you can still go get a ham and cheese sandwich and some French fries, have a meal, or go shopping.” Understanding that people who experience psychosis can and do successfully stay housed is essential for effectively using the Housing First Model. Below, are some things to keep in mind to support people experiencing psychosis.
people who experience psychosis can and do successfully stay housed...
Begin by assessing for safety. People with psychosis are at an increased risk of suicide. If a case manager thinks a person is at risk of hurting themselves, they should be direct and open about the topic. A case manager should try to figure out if the person has a specific plan, previously attempted suicide, and the likelihood that they will act on their suicidal thoughts. The risk of violence to others is also a possibility. However, it’s important to point out that people with a mental illness are not more likely to commit violent acts. Instead, they are over 10 times more likely to be the victims of violent crime than the general population. If there is a clear threat, consider assisting the participant with hospitalization or safety planning and contracting.
Don’t argue with psychosis. The nature of delusions is that they are fixed beliefs and unlikely to change based on conflicting evidence. Arguing with people about the validity of their idea will only encourage them to dig in their heels, find faults in your logic, and possibly even refuse to continue working with you. As with all harm reduction work, the quality of the relationship is essential. Case managers should align themselves with their participants and avoid being confrontational. Even casual statements like, “Don’t be silly” or “Get it together” can be dismissive and isolating. Remember that whatever they are experiencing is real to them and genuinely affects them. Help people explore their symptoms and speak in a calm, clear, and concise way. Don’t pretend to hear what the person hears or share in a false belief. Without feeding into a delusional thought, we can still identify with the feelings it creates in a person. For instance, a case manager might say, “It’s really scary to feel like you’re constantly being watched by others. That takes a lot of strength and courage. How do you manage to get through your day despite that?”
Help develop a list of options that can include personal coping strategies and professional support from a psychiatrist, therapist, or case management team. As we mentioned in a previous post, a participant has a right to choose whether or not to take medication. Although medication is considered a go-to response for the treatment of psychotic symptoms, there is some research showing that people may benefit from managing psychosis without medication. A recent study compared people with schizophrenia who were being treated with antipsychotic medications and those who were not. The study showed similar levels of symptoms but higher levels of general functioning among people not taking medication. Although medication may be most effective for some, we should explore strategies beyond medication with all of our participants to help them cope with psychosis. Don’t assume that someone needs medication in order to be successful in housing. At a recent training, one attendee mentioned a participant who was homeless for 25 years prior to being housed in their program, does not take medication, and maintains the cleanest apartment of anyone on their caseload!
Respect people’s right to use drugs. People may use illegal drugs or alcohol to self-medicate the symptoms of psychosis. For example, participants have reported using depressants like alcohol, heroin, or other opioid pain relievers to drown out voices and help them sleep. There might be therapeutic benefits to other substances as well. As researcher and journalist Helen Redmond explains, “Nicotine may even have specific properties that ‘treat’ symptoms of schizophrenia.” Consider the capacity for nicotine to improve mood, memory, and concentration and how that may balance the impact of psychosis. In a harm reduction program, helpers should never remove a helpful coping mechanism before finding substitutes. With substance use or psychosis the course of treatment is the same—to nonjudgmentally help people explore and understand the function, the potential consequences, and the alternative ways to manage it.
Some additional resources for information on psychosis include Mental Health First Aid, the National Alliance on Mental Illness (NAMI), and the Hearing Voices Movement.